‘Sit up, get dressed, keep moving’. Applying the hospital initiative to the hospice setting.

Presented at the Hospice UK Conference, 2018.

A collaborative pathway for malignant pleural effusion.

Presented at the Hospice UK Conference, 2018.

Delivering collaborative education to enhance patient-centred decision-making in renal failure.

Presented at the Hospice UK Conference, 2018.

Anticipatory care planning for patients with advanced cirrhosis: helping patients avoid unwanted admissions and procedures towards the end of life.

Presented at BASL (British Association for the Study of the Liver), York, 2018.

Improving end of life care for patients with advanced liver disease.

Presented at BSG (British Society for Gastroenterology), Liverpool, 2018.

A Pioneering Approach to Increase Access to Palliative Care for those with Advanced Liver and Renal Disease.

Presented at EAPC (European Association for Palliative Care), Madrid, 2017.

A short film highlighting the power of a person’s experience of advanced disease in a very unique way, exploring many issues for both the person and the nursing staff.

The St Barnabas Education Team showed Debbie’s film to two groups of nurses during one of our teaching sessions at the hospice. The film tells the story of Debbie, who has advanced Parkinson’s disease, and was created with our Artist-in-Residence.

Both groups of nurses viewed the film with great interest and discussed the various issues it raised for the person with the illness and for themselves. These included, for example, discrimination against disability, assumptions and judgement making, managing expectations, ‘seeing the person beyond the disease’, the ability to be free and to make decisions, the meaning of spirituality, the power of music, medication issues and making some sense of the concept of ‘resilience’.

You can watch the film here:

Debbie’s story and film were also presented at the NAPCE (National Association of Palliative Care Educators) Conference in December 2017 in Leeds where it won the Frances Sheldon Poster Award in recognition of the best initiative to support the theme of the conference which was “Inclusivity in Palliative Care Education: Discerning or Discriminating”.

Designing and Implementing a Specialist Renal Palliative Care Service.

Presented at Hospice UK, Liverpool, 2016.

Review of oesophageal stent use and outcomes in the management of patients with palliative oesophageal carcinoma.

Presented at Palliative Care Congress, Glasgow, 2016.

‘Dying to stay at home’ – experiences of end of life care at home for patients dying of cirrhosis.

Presented at BASL (British Association for the Study of the Liver), Manchester, 2016.