Healthcare professionals

Research

Participating in healthcare research helps us develop, improve and provide the best quality care to our patients and families.

Please be aware that the information on this page covers sensitive subjects and may also contain medical and scientific terminology.

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Sign up to get all the latest news about our research. We'll send you a biannual research newsletter to share our highlights and milestones as we expand our research activities at both our hospices.

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Get to know our Research Team
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Jo was a Specialist Physiotherapist in Palliative Care at a hospice in Liverpool before starting her career in research. She completed a PhD in Health Services Research at the Cicely Saunders Institute, King’s College London (KCL) in 2020. She is now a Research Fellow at KCL and is seconded to work at St Barnabas Hospices two days per week.

Jo leads on research at St Barnabas Hospices, building research capacity and capability, to ensure people accessing our services have opportunities to participate in research. At KCL, she is the Scientific Project Manager for the Inspire Randomised Controlled Trial

Tabitha joined St Barnabas Hospices in 2022 following a career in research management at the University of Oxford. Prior to this, Tabitha completed a PhD in History at the University of Warwick and Victoria & Albert Museum.

Tabitha supports the Research Team with research governance, ensuring that our research activities are conducted within the appropriate ethical, legal and professional frameworks.

Phoebe has just completed a master’s in Clinical Neuroscience at UCL and hopes to begin training as a Clinical Psychologist in the near future. Her current focus is on growing the PCIE group and research administration, including managing recruitment to ongoing studies and analysing data for the Planning Future Care During Covid-19 study.

Recent research collaborations at St Barnabas House

Delirium – sudden confusion and/or restlessness – often occurs in the last days of life and is upsetting for patients, families and healthcare professionals. The CHELsea II clinical trial aims to assess whether providing (drip) fluids for people who are dying reduces the likelihood of developing delirium. More information on the trial can be found here: CHELsea II trial

In collaboration with the University of Surrey

‘Hospice at Home’ teams care for people approaching end of life in the comfort of their home surroundings. Researchers at the University of Kent developed a new toolkit to help Hospice at Home services like ours evaluate and improve what they do. The Hospice at Home team and the Research Team from St Barnabas House met with a researcher to pilot using the toolkit. More information can be found here: Hospice at Home Toolkit

In collaboration with the University of Kent

It is important to understand more about Motor Neurone Disease (MND) in order to develop better care and new treatments. The MND Register (of England, Wales and Northern Ireland) aims to collect information about every person with MND in the UK. This will help researchers to identify potential risk factors or causes of MND to help prevention and treatment of the disease. More information on the register can be found here: MND Register

In collaboration with King’s College London and the University of Oxford

This study focused on how hospices in the UK can provide the best care for people outside of normal working hours. St Barnabas House took part in two phases of the project. In one phase, staff from St Barnabas told researchers about how we provide care outside of normal working hours in this area of Sussex. In a later phase, patients and their families/carers told the researchers about their experiences of receiving care outside of normal working hours. More information about the study can be found here: Out-of-Hours Community Palliative Care

In collaboration with King’s College London

This study aimed to understand how people living with advanced respiratory disease manage their daily activities (washing, dressing, cooking, shopping, housework, etc.) as their disease progresses. People receiving care from St Barnabas took part in the study by completing a couple of questionnaires each month. The findings of the study showed that a decrease in mobility indicates that people are likely to struggle more with daily activities and suggests that these struggles could be alleviated with timely support from physiotherapists and occupational therapists.

Read the full article here.

Download our Newsletter

Introduction to our research team, looking at the the progress that our research had over the years at St Barnabas House and our sister hospice Chestnut Tree House, plus looking to the future and our ongoing projects.

Get in touch

If you'd like to collaborate with us on future research, or have any questions, please contact us on: research@stbh.org.uk

Email the Research Team

Be part of future research

From time to time we’re asked to advertise research studies to members of the public on our website. Adverts about these studies will include information on how you can find out more about the study and what to do if you are interested in participating.

More generally

If you’re interested to hear about opportunities to be involved in any health research studies relevant to you, you can now create a health research account with the National Institute of Health and Care Research.