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Information Leaflets

Data Protection and how it affects you

Data Protection relates to the information you provide. This page explains how we might use your personal data and who it may be shared with. Data you provide is processed in accordance with the Data Protection Act 2018.


Please note: You can also download a copy of this information leaflet at the bottom of this page or view our full list of information leaflets.

When you are referred to the hospice, you will be seen by a member of staff. You will be asked about your current concerns and the impact your illness is having on you and your family. This is to find out what kind of help the hospice may be able to offer. We will then agree a management plan with you.

The following explains what happens to the information you provide. It also explains who this may be shared with, so that we can provide your care. The information you provide is processed in accordance with the Data Protection Act 2018.

  • Notes of your meeting with us become part of your electronic clinical record. This is updated every time you have contact with us.
  • A number of professional staff at the hospice involved in your care such as doctors, nurses, counsellors, physiotherapists, social workers and the Palliative Nursing Team at Worthing Hospital will have access to your electronic record.
  • We will also need to share information with other professionals outside the hospice who are also involved in your care. We will only provide them with information that they need to know in order to do their job. This may include your Consultant(s), General Practitioner, specialist nurses, community nurses and any other relevant professionals.
  • We will also request your current General Practitioner to share with us your medical record held by them.
  • If you give us any personal information about your family or anyone close to you, this may be documented. Please do not provide us with information about other people if you know they would not agree to it. Please tell other people if you have provided information about them to us.
  • We usually keep details of your next of kin and/or nearest relatives or carers, for use in emergencies. We will obtain consent from them if we keep their details so that we can offer them support in the future.
  • Your record will be kept by the hospice for a period of time specified by Law. This will happen even when you are no longer a patient.
  • Occasionally records may be inspected by statutory inspectors of our service or by our staff carrying out audits of care. Patients will be informed that disclosure has been required, and in some instances explicit consent will be requested.
  • You can view your record by making a Subject Access Request.
  • If you would like more information, please talk to member of staff.

Further information

For more information about your Electronic Patient Record please refer to the leaflet:

“Understanding your Electronic Patient Record and sharing of information with healthcare professionals who care for you”

Download Leaflet